Monthly Archives: November 2013

12 Months of Thumb Twiddling

Well the 31st October has been and gone for another year. For most and me, normally, it means costumes, parties and sweets.

I wasn’t particularly inspired this year. The 31st October 2013 marked a full year since I was sitting in St John’s Institute of Dermatology at St Thomas’ Hospital being told that I would be getting answers about my condition and be told what it will mean to the rest of my life. I haven’t been back to St John’s since.

The last time I heard from the department was in on the 25th September, on the 27th July I was told the preliminary results had shown a mutation and the full report should be concluded within the week.

I have had my fair share of shit from Hospitals over the years but this is taking the biscuit really. I understood when I was told that due to budget constraints the testing could take a while and I patiently waited for it to be done, but then having to wait 111 days for an explanation beyond you have a mutated gene is a bit much really.

The positivity my first meeting with St John’s brought me has well and truly been drained away, and they are now added to the hospital departments have let me down and provided me with an absolutely pathetic services. The good list is still unfortunately limited to two, people not departments.

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