Monthly Archives: June 2013

Sitting, Waiting, Wishing

Raise your glasses to another 3 months of sitting around and doing bugger all about my low blood levels.

My haematologist has decided that we will continue to monitor my blood levels. Ya know, because doing nothing for 6 months has been productive so far, why not wait another 3 months before a decision is made.

Essentially this is where we are;

  • My levels of haemoglobin, platelets and white blood cells have all been fluctuating by a few decimal places every couple of months, but all are below the acceptable range.
  • My bone marrow biopsy indicated I have empty bone marrow, i.e. it is not producing blood cells.
  • I have an enlarged spleen.

This has been the case since the 18th of December, I make that 176 days of doing diddly-squat and it will be 266 days or 73% of the year, before any action could be taken.

There was some progress, we have been able to conclude that it is very unlikely to be drug induced, and therefore I have been allowed to start back on one of my tablets. YEAY

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A job well done

After the short notice, my operation went very well and I have spent the last 3 weeks recovering. My swelling has quickly gone down and to the outside world it is nearly impossible to tell that I have just had surgery.

The operation was fairly quick and easy. They removed a fold in my skin, the result of a previous operation, revised my scars and gave my face a little bit of a tug for good measure. I must say, from what I can see Mr K has done a wonderful job on my scars, so it was all worth it.

A smooth recovery has been extremely important to me this time around. I have a feeling operations will be pretty regularly every couple of years, so I tried to hone my skills to become a slick recovery machine, basically I tried to delay chewing for as long as possible, I think I lasted about four days, then the Haribo beat my will power. I fared a bit better with my TV challenge, which consisted of watching lots of it, so you know, you win some, you lose some.

I see my surgeon again in 3 weeks time for the big A.OK and a bit of self-congratulation. He took the time out to explain what he thinks the NEXT operation will be so I am sure to be added to his list again, lets hope I get a bit more than 3 weeks notice in a couple of years time.

One thing this surgery hasn’t helped is my knee. Being half way through a 9 month recovery from ACL surgery and then having to spend 3 weeks laid up recovering does not help progress. It feels like I have fallen back about 2 months in my recovery. Oh to have a body that is fixed not constantly in a state of repair.

It is back to the blood doctor tonight, for another chapter in my saga.